World Trade Center Health Program Data Center

Since 2002, the World Trade Center Health Program Data Center at Icahn School of Medicine has coordinated medical care and developed medical protocols, managed and analyzed data, built and maintained data systems and databases, and coordinated the outreach and patient education activities for the six institutions that comprise the General Responder Consortium of the federally funded World Trade Center Health Program. Clinical Centers of Excellence hosted by each of these six institutions, including Icahn School of Medicine, New York University at Bellevue Hospital, Long Island Jewish Medical Center, State University of New York—Downstate, State University of New York—Stonybrook, and University of Medicine and Dentistry of New Jersey, provide medical and mental health care, benefits counseling, and outreach and education to more than 30,000 World Trade Center responders, workers, and volunteers who participated in the rescue, recovery, restoration, and clean-up efforts at the World Trade Center site in response to the September 11, 2001 terrorist attacks on the World Trade Center in New York City.

Through our work over the past decade, the Data Center (DC) has developed expertise in the coordination of medical care to World Trade Center (WTC) responders, development of monitoring and treatment protocols for WTC-related disease, and the management, organization, and analysis of data generated during medical exams by the Clinical Centers of Excellence. The DC has developed and implemented effective multilingual and multicultural outreach, retention, and patient education strategies, and published state-of-the-art clinical, statistical and epidemiological analyses of the data we collected in leading peer reviewed biomedical journals in order to inform physicians, planners, public health officials and policy makers in this country and around the world of the medical consequences of the attacks on the World Trade Center of September 11, 2001.

Our staff at Icahn School of Medicine has become profoundly aware of the physical and mental health problems that confront the WTC responder population. We have become deeply knowledgeable about the complex social milieu in which responders live. We are proud and honored to do our work on behalf of those WTC responders who gave so much to us after September 11, 2001.