The establishment of a patient registry and initiation of related projects of the New York State Multiple Sclerosis Consortium

ID Number 05-1167

Principal Investigator(s)
Fred Lublin

Department(s) or Division(s)


The New York State Multiple Sclerosis Consortium (NYSMSC) is a partnership of 17 multiple sclerosis centers in New York State. The purpose of the study is to gain a better understanding of multiple sclerosis in New York State in terms of the number of people who have it, patient demographics (e.g., age, sex, and education), type of multiple sclerosis, and treatment medication schedule. The study consists of an initial visit and standard clinical follow-up visits that occur once a year over approximately 10 years. The study visit consists of filling out a questionnaire and completing the Multiple Sclerosis Functional Composite Test (MSFC), which takes approximately one hour. The MSFC consists of three evaluations: a timed 25-foot walk, which determines walking ability; a nine-hole peg test, which is a hand coordination test that requires putting pegs into nine holes; and the Paced Auditory Serial Addition Task, which tests mental function.

Contact Information
Colleen Farrell
(212) 241-3048

Recruiting Patients: No