Patient Stories

The faculty and staff of the Seaver Autism Center for Research and Treatment are pleased to have worked with these patients and families, and we are grateful for their willingness to share their personal stories about autism spectrum disorder and related conditions.

Ada Mae’s Journey, May 14, 2015
In 2014, Ada Mae Grashow was diagnosed with Phelan-McDermid syndrome, a rare genetic condition.

Finding New Hope Through a Clinical Trial, July 22, 2105
Kali Kurtz was six months old when she began showing symptoms of what would later be identified as Phelan-McDermid syndrome.

The New Normal: What Our Journey with Autism Has Taught Us, May 5, 2014
The Underwood family was surprised when their daughter Charilyn was diagnosed with autism in 2004.