As a service to families and patients with autism spectrum disorder and related conditions, the Seaver Autism Center for Research and Treatment has collected a list of helpful resources, including national and local health organizations, parent advocacy groups, reading materials, and other media and activities.
If you would like to read about research findings by Seaver Autism Center experts, please explore our recent news or our team members’ recent publications. If you would like to learn more about Phelan-McDermid syndrome (PMS) and the Shank3 gene, visit the Seaver Autism Center site detailing PMS research and education.
In addition, our quarterly newsletter provides updates on activities in the Seaver Autism Center, recent research results, and other timely information.
National Autism and Health Organizations
The Autism Science Foundation provides funding and other assistance to scientists and organizations conducting, facilitating, publicizing, and disseminating autism research.
The Autism Society seeks to improve the lives of all affected by autism by increasing awareness, advocating for services, and providing the latest information.
Autism Speaks funds global biomedical research, raises public awareness, and brings hope to all who deal with the hardships of this disorder.
The ADNP Kids Research Foundation advances the awareness and accelerates the treatment of ADNP Syndrome / Helsmoortel – Van Der Aa Syndrome (ADNP).
The FRAXA Research Foundation is a nonprofit organization founded by Fragile X families, for Fragile X families. The foundation funds grants and fellowships for research.
The National Center on Birth Defects and Developmental Disabilities (NCBDDD) promotes the health of babies, children, and adults, and enhances the potential for full, productive living.
The National Fragile X Foundation seeks to spread awareness of Fragile X syndrome, provide education and help for families, and fund important research.
The National Institutes of Health (NIH) Clinical Trials Website is a registry of federally and privately supported clinical trials conducted in the United States and around the world.
The Organization for Autism Research (OAR), led by parents and grandparents of children and adults on the autism spectrum, seeks to use applied science to answer questions that individuals with autism and caregivers confront daily.
The Phelan-McDermid Syndrome Foundation (PMSF) supports parents, funds research, hosts conferences, and increases awareness of this disorder. Learn more about Phelan-McDermid syndrome from the Seaver Autism Center.
Local Service Agencies
The following local groups provide autism spectrum disorder resources and support for families, patients, and researchers in the New York and New Jersey areas.
Advocates for Children of New York works on behalf of children who are at risk for school-based discrimination and/or academic failure.
Applied Behavioral Mental Health Counseling provides Applied Behavioral Analysis (ABA) in-home services for people with autistic spectrum disorders, and for their families in all of NY, NJ and CT. Provides free workshops for parents, families, and providers about autism and ABA related topics.
The Asperger Syndrome and High Functioning Autism Association is a Long Island-based organization that spreads awareness and connects people who have High Functioning Autism with programs and services.
The Association of Metroarea Autistic Children provides services for people with autistic spectrum disorders, and for their families in the metro New York area.
Autism New Jersey is a nonprofit agency providing information and advocacy, services, family and professional education, and consultation.
The Autism Society of America (Manhattan Chapter) offers diagnostic, education and outreach services through their Community Resource Center.
The Foundation for Empowering Citizens with Autism is an organization in Westchester County, NY providing educational opportunities for children with autism.
The Global and Regional Asperger Syndrome Partnership (GRASP) provides education, support groups, and advocacy services for people with Asperger's syndrome or autism.
The Jewish Community Center in Manhattan has a subset providing services for individuals with special needs, as well as for families and professionals.
The National Institute for People with Disabilities (YAI-NIPD) service organization in New York, which has a formal affiliation with the Seaver Autism Center, is the largest organization dedicated to serving people with developmental disabilities from birth to the end of life in the New York metropolitan region.
The New York State Office for People with Developmental Disabilities coordinates services for more than 120,000 people with developmental disabilities in New York State.
Include NYC provides support for families of children and young adults with special needs. Services are available in English and Spanish.
The UJA Federation of New York supports hundreds of individuals with disabilities and their families through its network of funded programs.