Family Stories

The faculty and staff of the Seaver Autism Center for Research and Treatment are pleased to have worked with these patients and families, and we are grateful for their willingness to share their personal stories about autism spectrum disorder and related conditions.

Olivia's Story
The road to better understanding Olivia’s Phelan-McDermid Syndrome diagnosis lead the Papageorgiou family to the Seaver Autism Center.

Ben's Story
The Buchanan family moved from Utah to New York so their son with Phelan-McDermid Syndrome could participate in treatment trials at the Seaver Autism Center.

Rowland's Story
The Egerton-Warburton family shares their journey to an ADNP diagnosis for their son, Rowland.

Jonah’s Story
The Whitney family, upon discovering their son had a rare FOXP1 mutation, partnered with the Seaver Autism Center to help better understand FOXP1-related disorder.

Gavin’s Story
The Clayton family has found a second family in the Seaver Autism Center through participating in clinical trials.

Ada Mae’s Journey
In 2014, Ada Mae Grashow was diagnosed with Phelan-McDermid syndrome, a rare genetic condition.

Finding New Hope Through a Clinical Trial
Kali Kurtz was six months old when she began showing symptoms of what would later be identified as Phelan-McDermid syndrome.

The New Normal: What Our Journey with Autism Has Taught Us
The Underwood family was surprised when their daughter Charilyn was diagnosed with autism in 2004.