We provide all enrolled patients with regular examinations by physicians and neuropsychologists who specialize in the problems that HIV can cause. In addition, our research coordinators work closely with research participants and their families to arrange visits and make it all run smoothly. We are happy to share the results of our examinations with your primary care provider, if you would like. We are dedicated to improving the understanding of HIV and thereby the lives of patients living with HIV.
Participation is voluntary, and you can stop at any time. There is no cost, and we reimburse you for your time and expenses for certain procedures. We can provide a copy of the patient consent form for you to read, or you can drop by the office to discuss the study with a research coordinator.
HIV and Organ Donation
HIV enters brain and nervous system tissue soon after a person becomes infected. Some people develop serious complications, either as a direct effect of the HIV itself or as a result of an abnormal immune system. People with HIV/AIDS can develop loss of memory, muscle control, muscle coordination, or intellectual capacity. The causes of these problems are unsolved medical mysteries whose answers will be found only through continued and dedicated research. But research cannot progress without brain and spinal cord tissue donated from HIV infected people.
“...The opportunity to be an organ donor gives me a chance to leave a legacy. It gives me a way to determine how I can pass on with meaning and with dignity.”
Sandy—MHBB organ donor
“I lost my child, Kevin, to AIDS. He felt that by deciding to be an organ donor, he was helping some other mother’s child in his or her own fight against AIDS. I feel that way still.”
Lucille—mother of MHBB organ donor
What Happens When You Become a Donor
People often hesitate to sign Organ Donor Consent forms, usually because they have questions, such as: