We have a comprehensive list of helpful resources categorized by different topics for people living with spinal cord injury, their partners, and the healthcare professionals who treat them. Many other organizations provide news, educational material, and contacts for and by persons with spinal cord injury (SCI). Below you will find a list of websites of organizations and individuals, categorized by different topics.
If you would like your resource link featured on our website please fill out this FORM.
Disclaimer:
Linking to publications, materials or websites of other organizations or entities does not constitute endorsement by Mount Sinai of such publications, materials or websites. Mount Sinai provides these references and links because they may be of value to persons interested in SCI.
- Healthcare Resources for Women with SCI (HeRe for Women): In collaboration with Texas Model Spinal Cord Injury System we released a website containing a national directory of links to consumer-based information, education, and resources on healthcare topics for women after SCI. This site also provides a growing list of practitioners who serve women with SCI throughout the nation and a network of professionals and consumers who are interested in the health and wellness of women with SCI. Visit our website HERE
- Initiative for Women with Disabilities: NYU Langone’s Initiative for Women with Disabilities provides primary gynecological care provide workshops, classes, and wellness services that promote overall physical and mental wellbeing
- The Center for Research on Women with Disabilities: CROWD promotes, develops, and disseminates information to improve the health and expand the life choices of women with disabilities. The site provides information on sexuality, reproductive health, self-esteem, stress management, and more
- Disability and Health Information for Women with Disabilities: Centers for disease control and Prevention website that has tools and health information for women with disabilities
- Reproductive Health for Women with Spinal Cord Injury: Video lectures from University of Alabama on reproductive health for women, such as breast examination, mammograms and pap smears, managing issues of pregnancy and labor and delivery such as medications.
- Pregnancy and Spinal Cord Injury: This booklet provides women with spinal cord injury the information they need to make informed decisions when planning a pregnancy. It outlines key things to consider during the perinatal period (preconception, conception, pregnancy, labor and delivery and postpartum) and where to go to get additional information, help and services.
- National Research Center for Parents with Disabilities: The National Research Center for Parents with Disabilities conducts research and provides training and technical assistance to improve the lives of parents with disabilities and their families.
- Disabled Parenting: The Disabled Parenting Project (DPP), which is part of the National Research Center for Parents with Disabilities, is an online space for sharing experiences, advice, and conversations among disabled parents as well as those considering parenthood.
- SCI Parenting: A website based in Sweden discussing all aspects of the perinatal journey for women with SCI.
- Through Looking Glass: A resource on childbirth and parenting, adaptive equipment for childcare, networking and support.
- MobileWOMEN.org: An Internet magazine for women with disabilities. The site, supported in part by the Reeve Foundation, features articles, resources and a place to share experiences and solutions.
