Data Guidelines

Researchers often approach the Alzheimer’s Disease Research Center (ADRC) at the Icahn School of Medicine at Mount Sinai with requests for data, tissue, and other resources. We welcome these requests—even if the researchers are not funded through ADRC—and we have the following guidelines.

Please note that if investigators use ADRC resources, we expect that you will document our contribution in any resulting publications.

Tissue Requests

When an ADRC project requests tissue, we distribute the materials directly to the Principal Investigator (PI). For other projects, the Tissue Allocation Committee makes a decision on a case-by-case basis, based on a submitted proposal. Proposals should describe:

  • Aims and protocols to be used
  • Evidence of expertise in performing the study
  • Compliance with ethical and regulatory requirements
  • Agreement to ADRC’s data sharing and collaborative policies

The committee, led by Vahram Haroutunian, PhD, includes Patrick Hof, MD, Samuel Gandy, MD, and Mary Sano, PhD. The committee makes its decision based on the following considerations:

  • Scientific merit
  • Compliance with ADRC’s mission and priorities
  • Specimen availability
  • Investigator priority order (ADRC PIs, local collaborators, other Alzheimer Disease Resource Center and Alzheimer’s Disease Cooperative Study researchers, other researchers)
  • Availability of resources

Please make all tissue requests through Dr. Vahram Haroutunian or Dr. Mary Sano.

Data Requests

ADRC cores generate data that are available through the National Alzheimer’s Coordinating Center. These data are the property of investigators who have generated the data. While the ADRC strongly encourages and supports collaboration and data sharing, the final decision about sharing data belongs to the project’s PI.

Please direct all data archive requests to the Data Management Core PI, Carolyn Zhu, PhD Director of the Data Core for appropriate approval.

We developed the ADRC policies in accordance with the National Institutes of Health Alzheimer’s Disease Cooperative Study data sharing policy. For more information, see NIH Data Sharing Policy at the National Institutes of Health Office of Extramural Research.